Showing posts with label SIDS. Show all posts
Showing posts with label SIDS. Show all posts

Monday, August 31, 2009

Young women find support through Early Infant Loss group

Young women find support through Early Infant Loss groupKay Asher knows all too well what it's like to lose a baby. When she was 25 years old she had a stillbirth. About four years later she had a miscarriage. Not only that, but her daughter has had four miscarriages and her daughter-in-law, two. "At that time there was really no support other than the immediate family," Asher said. "And they didn't know what to say."

Seeing a need to provide support to women who have gone through similar experiences, Asher, a licensed clinical social worker, started the Early Infant Loss group, a support group for women who have had a miscarriage, other fetal loss or who have had a baby who died before the age of 2.


Read more: http://www.shreveporttimes.com/article/20090831/LIVING/908300338/1004/living


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Saturday, June 27, 2009

Couple’s grief for babies

Couples grief for babiesJO HALL never expected supporting Red Nose Day would one day help her in hour of need, but it has.

The Avonsleigh woman has been struggling to cope after
miscarrying two babies in two years.

Ms Hall may not have given birth, but she still grieves.

She couldn’t believe it when she lost her first child in 2007 to discover that SIDS and Kids offered counselling services.

“When you are in hospital they give you a booklet to read about miscarriages … I saw it was produced by SIDS,” Ms Hall said.

Read more:
http://www.starnewsgroup.com.au/story/75806


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Friday, June 19, 2009

“This Side Up…While Sleeping”

raising awareness of SIDS and safe-sleeping practices in Orange CountyORLANDO, June 12, 2009 – The Hayes Foundation’s This Side Up campaign is an educational effort that reminds anyone who looks after a baby (parents, grandparents, siblings and daycare providers) that babies are at less of a risk of SIDS if placed on their backs at nap or bed time. Funded by a grant from the 100 Women Strong, HCECF will distribute the campaign’s educational onesies to all babies born in Orange County hospitals. The onesies read “This Side Up…While Sleeping” on the front and offer additional safe-sleeping tips on the back. The grant funding will cover the costs of the campaign for several months, but the campaign will also include a “pay it forward approach” to the community to continue the distribution of the onesies.

“The onesies are a reminder of a topic that many parents and caregivers are uncomfortable discussing,” said Karen van Caulil, executive director of HCECF. “They are a tangible way to start the conversation about SIDS and safe-sleeping habits for babies. We have seen SIDS deaths occur all too often in our community. It’s our hope to educate and raise awareness of ways we can reduce our risk.”

Added Kyra Oliver, who founded The Hayes Foundation days after her son Hayes died of SIDS at 4½ months: “We are thrilled that the Health Council of East Central Florida is willing to help us spread our message and raise awareness of SIDS. Our vision is to create a world without SIDS, and this partnership will take us one step closer to that goal.”

Tampa Bay Buccaneers kicker Matt Bryant and his wife Melissa have also joined the effort to spread the This Side Up campaign. The Bryants, known in the Tampa Bay community for their support of children and those in need through the March of Dimes, Special Olympics and Cystic Fibrosis Foundation, among others, lost 3-month-old son Matthew Tryson Bryant to SIDS last September.

“SIDS doesn’t discriminate: It can affect any family at any time,” said Matt Bryant, the Bucs’ 2007 nominee for the NFL’s Walter Payton Man of the Year award for his playing ability and community service. “We are living proof of that and want to remind every parent not to take anything for granted. We hope we can help spread the This Side Up message here in Central Florida, in Tampa Bay and across Florida.”

About 2,500 families in the United States lose a baby to SIDS each year. That’s about half as many deaths related to SIDS as in 1994 when the national Back to Sleep campaign was introduced.

“Although we have seen a decline of SIDS deaths locally in recent years, the rate of sudden unexpected infant deaths in Orange County continues to increase and probably includes babies who were not put to sleep as safely as possible,” Dr. van Caulil said. “We believe this campaign will help educate anyone who looks after a baby of the proper sleeping position and environment.”

The Hayes Foundation introduced the This Side Up campaign in 2006 as an extension of Back to Sleep with the goal of putting a tangible reminder in the hands of those who look after babies. The Hayes Foundation has distributed more than 50,000 onesies in more than 20 hospitals in Virginia and Tennessee and through Virginia Gov. Timothy M. Kaine’s Smart Beginnings Initiative. In April, it partnered with The Raise Foundation to launch the campaign in Orange County, Calif.

“SIDS continues to puzzle the medical community,” Oliver said. “While it’s not possible to prevent SIDS, research has proven there are factors that can reduce the risk of SIDS. That’s what our campaign is about.”

Oliver’s son Hayes was sleeping on his stomach while at daycare when she got a phone call that he wasn’t breathing. Just as she was getting to know her son, he was gone. In the days following his death, she started The Hayes Foundation in his honor. Since its founding in 2002, the foundation has raised more than $500,000 for SIDS awareness and education.

Organizations interested in learning more about the This Side Up onesies project or who are interested in donating to this important cause can contact the Health Council of East Central Florida at 407.977.1610 for more information.



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Thursday, September 11, 2008

'Walk to Remember' is Saturday

a memorial to those who have had a baby die through miscarriage, stillbirth or newborn deathThe annual Walk To Remember is planned for Saturday at the Traverse Area District Library.

The walk, scheduled for 11 a.m., is a memorial to those who have had a baby die through miscarriage, stillbirth or newborn death. The walk gives families the opportunity to remember and honor the memory of their wanted and wished for child.

Families will gather at the library beginning in the community room just off the front entrance at 11 a.m. Participants will then move to the garden and hang ribbons on a tree in memory of their babies, followed by a walk along the Boardman Trail. A short program with a speaker, music and refreshments is also planned.

Volunteers from Munson Medical Center’s RTS Bereavement Services sponsors this event. The department offers support to parents and families from the community who have had this type of a loss.

Further information is available by calling 935-7412.

Source: http://www.leelanaunews.com/blog/2008/09/11/walk-to-remember-is-saturday/



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Friday, December 14, 2007

Baby lost to SIDS spurs mom into action

Kure Walters wanted to raise $1,000.

But as she says, "someone" had more in mind.

Walters knew last spring she had to channel the grief of losing her 6-week-old daughter to sudden infant death syndrome into something positive, but her initial efforts opened more doors than she ever expected.

Walters and friend Detria Elsner, who lost her child to SIDS 10 years ago, eventually staged a fundraising dinner that netted $15,000 for the SIDS-affiliated nonprofit First Candle.

Now Walters has developed Sunshine Baby into a Tampa Bay affiliate of First Candle.

Over breakfast at Mimi's Cafe, I talked to Walters about her efforts.

Pull up a chair and join us.

ERNEST: What prompted you to channel your grief into action?

WALTERS: When my husband and I lost our daughter, we had - within minutes - people from our church the Crossing, family and friends at our home. They were a remarkable outlet and resource for us. They surrounded us. Every life has an impact, whether it's six weeks, 20 years or 80 years. Instead of looking at it as though we can only grieve, we're celebrating that she was here for six weeks and then figuring out what we can do to help other people have a healthy, coping bereavement process.

It sounds like your faith helped you.

Definitely. I fully believe God never left me. I don't feel God forsaked me, my husband, my family or my daughter. I believe that he chose a time for his daughter to come home. Who am I to question that? He gave me her for six weeks and he's given me two other boys. What more can I really ask for? Some people try their whole lives to have children and I have three. I'm very grateful and I hold on to my faith very seriously.

What's been the reaction from people you've reached out to?

It's really hard when you go and talk about infant death. People don't want to talk about the death of an infant. It's not pretty. It's just like doing something for children with cancer. At the same time, I've found there are a lot of people who had lost children to a miscarriage or stillbirth or SIDS. They just didn't talk about it because they didn't have anywhere to go talk about it. They didn't know how to talk about it. They were more willing to step in because they had this happen to them or they knew someone it had happened to. We had a great response.

What do we know about SIDS? From what I can gather, it's still a mystery.

First Candle launched the "back to sleep" campaign because they felt babies were lying on their stomachs and suffocating in the crib, or the crib bumpers were suffocating them. So they advised putting them on their backs so they aren't rolling over and getting their faces in the mattress. But as we've gone through medical research, we've learned a baby can just stop breathing. There have been cases where babies have been in car seats, someone has just taken them out of the hospital, and they stop breathing in the car.

What else have we learned from research?

They're finding that the brain is smaller in SIDS babies. Some people also believe crib mattresses are made out of materials (that can cause babies) to stop breathing. Some people think it's sleep apnea and the baby is not able to adapt to this world. There's a lot of different theories. That's why medical research is imperative.

It must be encouraging to know there has been some progress.

There were a great amount of deaths that were happening a few years ago. It was well over 5,000 in the country and it dropped down to about 3,000 and now it's around 2,500 a year, which is great. But that's still 2,500 children a year, and that's still 2,500 families that are suffering every year. I didn't know about SIDS before I lost my daughter. I went from a happy mother to a statistic.

Do you and your husband want to try again?

We would like to have at least one other child - boy or girl - it doesn't make a difference. We want to make sure our children are okay with it because it was a shock to them. I have accepted my daughter was gone, but for me everyday is accepting it all over again. (My choice would be) to have three children. (But) I have two here and another waiting in heaven.

DESSERT: A postscript from Ernest

One of Sunshine Baby's primary goals is to establish a resource center where parents learn about grieving as well as get information about prenatal care. For information or to make a contribution, go to sids-sunshinebaby.org .

Source: http://www.sptimes.com/2007/12/14/Brandontimes/Baby_lost_to_SIDS_spu.shtml